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IFOPA International Fibrodysplasia Ossificans Progressiva Patient Information (Visit this link)
The International FOP Association, or IFOPA, is a nonprofit support organization for families dealing with a rare genetic condition known as Fibrodysplasia Ossificans Progressiva (FOP). Simply stated, FOP causes muscles and other connective tissue to turn into bone, eventually causing immobility as FOP bone fuses joints. The IFOPA's mission is to advance and support the Five Keys to a future without FOP. RESEARCH, the key to a treatment and cure. EDUCATION, the key to preventing misdiagnosis and finding more FOP families. ADVOCACY, the key to living independently with full equality. HOPE, the key to support, survival and community. CURE, the key to a better future for those with FOP & the people who love them.
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Added: Fri Jun 22 2007
